Mind over matter. The brain beneath my chronic pain.

When I was 11 I had a gymnastics coach who wondered if I might have juvenile arthritis. I was in pain often and I was training for gymnastics a few times a week. I have no idea if the pain that I had then is linked with the chronic pain that I experience today. I do think that some of my childhood contributed to it and probably contributes to the pain that I experience now.

I have been learning a lot about ways that emotional trauma has an impact on health, especially on chronic pain. One of the things that I’ve learned is that trauma or adverse childhood experiences and high levels of stress all contribute to chronic pain. Regardless of where the chronic pain stemmed from. Even when someone has pain resulting from an injury. When it becomes a chronic pain there is usually something in our past associated with trauma or stress. And likely something from childhood.

I didn’t have a traumatic childhood, but I do think that I had a stressful childhood. I don’t believe stress is necessarily a negative thing. There is definitely negative stress. But some of the stresses are good stresses. There are positive things that cause stress. Things like getting married, child birth, moving to a new place where you are starting a new job… But at the same time there are also negative stresses like a car accident or bullying or domestic violence that are also traumatic. Stress and trauma contribute to the way that your brain is wired. That has an impact on mental health and on how your body experiences pain.

Mind over matter. 

This isn’t to say that pain is all in your head. Unfortunately some people do believe that. But that’s not at all what I’m saying.  Our brain is wired and has receptors for pain that are developed in our childhood and are affected by our life experiences. So when you have an experience of high stress… that will have an effect on how your brain is wired. Both with how we experience those emotional situations and also with things like pain.

Childhood stresses

So when I was 11 years old I was a child of an RCMP member (Royal Canadian Mounted Police, a federal police force). That meant that we were usually transferred to a new posting every 3-5 years. I had already moved halfway across the country twice by the time I was 8. The move at age 8 moved us to an isolated community in the north. As caucasian English speakers we were in the minority. That doesn’t mean that we suffered from discrimination. In fact the opposite was true for “whites”. Even though the white English were less in numbers we still held greater power. We held the professional service positions that had brought us to the community: police, doctors, teachers, firefighters, etc.

We moved to that community from Saskatchewan. I was one of the few white girls in my class and I very quickly became a target of a bully. I lived in the community at a time when children were held back if they didn’t do well in school. Today we know for social development it is important for children to learn with their peer groups – even if they haven’t mastered the skill level to move on. At that time I had a 16 year old girl in my grade 5 class. I was 10 years old. And she decided that she didn’t like me. She harassed me, physically attacked me and tried to taunt me into fighting with her.

This is an example of the kind of stress that I experienced in my childhood. I think that it may have contributed to my health condition then and today. At the time these things didn’t really feel so serious. I certainly didn’t attribute it to the pain I was experiencing when I was in gymnastics.

Chronic acute stress

Skip ahead to today. I believe my development of fibromyalgia more than 15 years ago is due to chronic acute stress. Some of the stress hasn’t been traumatic. Some of the stress has been from some of those positive life changes.

I moved a lot. I enjoyed moving. I liked the change. I liked getting to know new communities… new people and learning a new culture. Those things, while I experienced them as positive stress, were stressful things. And were experiences that would have had an impact on my brain development and the wiring of those pain receptors and how my brain interprets the things that my body experiences.

Now Distant Thoughts

Marital stress

I have experienced quite a number of  traumatic things in my adult life. A marriage that ended after ten years. During which my ex-husband had two affairs. Moving multiple times. When we were looking for new opportunities and then because he had joined the military, and then when we were posted. We had two children during that time. I changed jobs multiple times because of those moves. Some of those things were positive. But, it was a roller coaster of a marriage. And the things that I think had the biggest impact on my health were those of highly traumatic negative stress.

Own your choices

Since that time I have also had a couple of very negative work environments. I ended up taking a medical leave and eventually moving on to another job. Making the decision to move on was a difficult one. And I made that decision again three years ago. I moved to a job that definitely allowed for a decrease in that stress, but also meant a big decrease in my pay cheque.

Significant loss

I lost my mother 6 years ago. It was quite sudden. We were close. I had just moved back to Nova Scotia where my parents were living, a few years before. We had lived a long way away from each other for quite a while. We didn’t live close enough to see each other everyday, but close enough that we could see each other when we wanted to.

When I lost my mom I felt like I’d lost a huge piece of myself. I’m sure most people who lose a parent at a young age feel that way. My mom was 59, I had eleven year old and nine year old daughters who were very close to their Nanny. I lost not only my mom, but the biggest support in my life.

Mom was someone who understood what I was going through. She also had chronic pain. She also had fibromyalgia. Mom could relate to my migraines. Mom would take care of me. She was one of the few people who did.

My own theory for a number of years now has been that my life of chronic acute stress has been the main cause of my pain, chronic sleep issues and frequent migraines.

Improving mental health and chronic pain

I’ve been learning a lot about things that we can do to improve our health and especially our pain and mental health. Each of those things can be isolated when describing what they are and how to treat them. But they are interconnected and have commonalities both in cause & effect and in treatments. So one of the things that I have learned will have the most significant benefit is to address those root causes. Of where the pain, the depression, the anxiety, the migraines, the chronic health issues all are likely stemming from.

Things like mindfulness practise. Things like cognitive behavioural therapy (CBT). By addressing childhood adversity in a way that you come to terms with and can separate those experiences from your pain conditions our health can improve. I’ve found a number of different experts from both traditional medicine and from a psychological perspective who say a lot of the same things.

Of course we need to address the things that are very clearly physical. Like eating right. And physical activity. And doing what you can to improve your sleep. Based on the routine that you have every day and the things that you consume.

Mom: A life force that lives on within and around me.

The brain beneath my chronic pain

But there is this whole other piece that can also help to integrate the way that your brain processes experiences and the way that your brain tells you your body is experiencing things. It is actually those pain receptors that can be positively affected by psychiatric and psychological treatment.

Mindfulness isn’t this hooey, soft, ineffective trend that people do just to feel some inner peace. Practising psychological, CBT, psychiatric treatment or emotional therapy are actually ways of changing the way that you brain perceives experiences.  Physical and otherwise.

I’m starting to practise some of these exercises. And I’m beginning to find that even the way that I think about my pain and how I am feeling each day is different than it was before. I have heard a lot of positive reports from others doing these exercises too.

These are not things that would be of concern medically or counter-indicated. They are not exercises that could result in making things worse. Unlike the medication that is prescribed to me that might have side effects or could result in addiction. Sometimes there are physical therapies that a person can try that can actually cause injury if not done properly.

The exercises that I am talking about are gentle exercises of your brain. At their very worst they could have no positive effect. At their very they best they could help me feel better.

Choose to feel better

People need to be hearing that we have control over how we perceive (feel) our own physical experiences. We are able to change our mental health. And we can do so by making choices and by doing exercises that require a little bit of discipline. But are actually quite easy to do without needing a lot of professional guidance.

A picture of mental health. Photo credit: Debbie Roberts

Photo credit: Debbie Roberts

So that’s where I am at.

I am starting to make these exercises a part of my routine.

It’s not easy. When you start from a place where your day to day means just getting through the day. Feeling completely spent, exhausted and uncomfortable. Maybe even in intolerable pain. It is very difficult to see where you can make the time and mental space to do these exercises.

So, I’m starting small. I’m starting with little short exercises a few times a week. Hopefully increasing that to several times/week soon, and then to a daily practise.

Once I have a daily practise, I will increase the length and number of exercises that I do. I can change the connection that my body has with my mind and my emotions and how I relate to the world. Both the physical environment around me and the people that I have relationships with.

I’m going to share a few resources that I have found really helpful.

I would love to hear your story and if you’ve tried any of these things, what kinds of outcomes you’ve had. Maybe there is some way that we can hold each other accountable. I’m going to do a challenge myself next month and I hope that you will join me. We can be accountability partners and supports for each other and others in need as well.

Sign up for my free worksheet to help you figure out your own wellness goals. Join my facebook group and tell me what your intention is. I want to hear how you plan to challenge yourself to get better.

Managing health with a doctor shortage

Are you affected by our doctor shortage?

According to a November 2017 article on CBC the doctor shortage amounts to 37,000 Nova Scotians without family doctors. Our family is about to join the ranks with four of us losing our doctor.

We were very fortunate when we left the metro area and moved to the rural town of Yarmouth. With a referral from my doctor, to a doctor he’d worked with in some capacity we had a doctor almost immediately after moving. I know people who went 4 years before finding a new doctor after their doctor’s practise closed.

Today we are faced with our doctor’s practise closing in two months, if he can’t find someone to take over his practise. Fortunately for our community our doctor is moving to another much needed position, at our ER. However, for people such as myself and my daughter who have chronic conditions or frequent health concerns… it just plain sucks.

What does someone needing regular and consistent care do?

It’s not such a big deal for people like my youngest who almost solely sees a doctor in the event of an emergency. But what does someone who needs regular and frequent care do? I’m fortunate to have a specialist who helps me attempt to manage my pain, but I need more than just pain management. And I need someone who is familiar with my history.

I’ve been trying to set myself up to be taking a well-rounded approach to my care. I’ve been reading books on many different approaches to chronic pain management. I see a physiotherapist and a massage therapist regularly. I’ve tried many other modalities and professionals for treatment.

I am attempting to track everything somehow. I use a lot of apps that cross-sync, so most of my data is available on my smartphone.

Not only do we have no choice about who we see, but we have not choice about IF we see someone

The challenge with reading and attempting alternate treatment, is that not all doctors support that. And with a doctor shortage, not only do we have no choice about who we see, but we have no choice about IF we see someone at this point.

If it were possible to see a doctor, nurse practitioner, or other medical professional on an ongoing basis privately, I believe I would. Unfortunately, of the alternate treatment modalities I’ve tried there is not one collaborative source for this that I can find.

I’m seriously considering getting my own wellness coach. Someone who can help me navigate all of this. It’s interesting that even when someone has the skill set to do so for someone else, it is still important to find a third party for ourselves.

Find a wellness coach and support community

If you are looking for someone who understands the challenges of navigating a complex medical and alternative medicine approach to treatment for your own health & wellbeing, contact me. I have done a lot of research and am aware of multiple sources for information and for support.

Want a place to chat with a coach and others in similar circumstances? Join our community.

I hope to see you there! 

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Drop me a note in the comments below, or connect with me on Twitter @ceilidhontherun, email me at ceilidho at ceilidhontherun dot com, or use my contact form!

I invite you to subscribe to my blog using one of the options available on my page (email, rss, Google Connect, like my page on Facebook, etc.)

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GIFT GUIDE for Chronic Pain Sufferers

A Gift Guide for Chronic Pain Sufferers

*This post contains affiliate links.

 

Wellness GIFT GUIDE for Chronic Pain sufferers

 

wellness gifts for chronic pain

I have researched nearly every tool that I use to help ease my chronic pain. Some help more than others, but following are tried and true products that help to make my life a little more bearable…

Aside from massage therapy, which I highly recommend, and being completely buoyant in water, heat probably provides me with the most relief. So, I love both my microwaveable heat packs, and moist-heat heating pad. The long magic bag that can wrap over my shoulders, and the large size heating pad that will extend from neck down to tail-bone…

1. Magic Bag Extended Combo Pack

2. Theratherm Digital Moist Heating Pad – Large

There are a number of products on the market for topical pain relief, extra strength Voltaren provides me with a bit of relief…

3. Back Pain Killer Extra Strength Relieve Cream Voltaren 2.32% 30g / relief gel muscle joint

 

For more targeted pain relief I use a tens machine on trigger points that just won’t stop aggravating me…

4. TENS MACHINE (TENS 7000) FOR PAIN RELIEF AND MUSCLE STIMULATION

 

My sleep suffers significantly as does many chronic pain sufferers’, so I have found a few tools to help including aromotherapy essential oils and blue light blockers…

5. ArtNaturals Aromatherapy Essential Oil and Diffuser Set

6. Amber light & reading glasses – Ultimate Sleep Bundle

Somnilight Ultimate Sleep Bundle

There is something soothing about a warm cup of tea, whether for sickness, pain, insomnia, etc. Davids Tea are my favourite…

7. DAVIDs TEA – Organic Cold 911

DAVIDs TEA – Organic Mother’s Little Helper

 

We all need to stay hydrated for optimal health, but pain sufferers especially need to keep those toxins flushing. I really like infusing my water with lemons or different varieties of frozen fruit. A travel bottle and infuser in one is a great gift for someone who needs to keep the water handy and wants to add some flavour and/or additional health benefits from infusion…

8. 2-in-1 Infuser Water Bottle,CLINE Sport Water Bottles BPA Free Gym Water Bottle with Fruit Lemon Squeezer

I take a lot of medications and supplements, and with the brain fog caused by meds, lack of sleep and the pain itself, I need a lot of reminders. I use an app that serves both as a reminder and a log, and still need an organizer for when I forget to log my meds and have no recollection if I took them or not…

9. MEDca Pop-Up Weekly Pill Organizer, Single Box and 4 Daily Compartments

 

I have found hydrotherapy to be the ultimate in pain relief, before purchasing a permanent hottub with therapeutic jets I had an inflatable hottub. I used it outdoors in the summer, and in my basement in the winter…

10. AQUAPARX 600SPA 155 cm Inflatable Hot Tub

I’ve been listening to a number of podcasts dedicated to improved health and chronic pain. Dr. Joe Tatta has a fantastic podcast focused on functional medicine and non-opioid treatment of pain. He recently published the book “Heal Your Pain Now”. I am just reading it now, but find it easy to read and like the focus of mind, movement and nutrition.

11. Heal Your Pain Now: The Revolutionary Program to Reset Your Brain and Body for a Pain-Free Life

 

When I spend a lot of time on the couch, or in my recliner I love my lap desk. I have a Sofia & Sam, that includes a task light (but not the extendable mouse pad). I don’t use the task light often, mainly because I am trying to reduce the bright LED light exposure to try to help my sleep…

12. Sofia + Sam Multi Tasking Lap Desk with USB Light (Black Top) | Supports Laptops Up To 15 Inches

Finally, an extra gift idea, simply a basket or bin comes in really handy. I had set up a draw in the coffee table with all of my necessities, but have recently filled a tub with the things I most need close by, and now can move from recliner to couch without having to move more than my bin and perhaps my lapdesk if I am computing…

13. LARGE ROUND BIN – 15×16″ with O-ring and thick, sturdy material that holds shape and gives structure, simply collapse bin and store when not in use

Hopefully this Gift Guide for chronic pain sufferers gave you some great shopping ideas!

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Drop me a note in the comments below, or connect with me on Twitter @ceilidhontherun or email me at trish at trishblogs dot com!

I invite you to subscribe to my blog using one of the options available on my page (email, rss, Google Connect, like my page on Facebook, etc.)

If you enjoyed this post, please do like/share it. You can do so using the easy share button below

Wellness GIFTGUIDE for chronic pain

 

What is Coaching with Trish and how does it work?

Have you been considering coaching to get some help with setting and/or reaching your goals?

Coaching is a great way to improve your chances of success!

Many people have heard about life and/or health coaching but aren’t really sure how it works. So, if that is you, you are not alone. Just about anyone can benefit from coaching, including other coaches.

Coaching helps individuals and groups to establish goals in different areas – whether it be life in general, career, business, finances, health and/or fitness, etc.  With the help of your coach YOU will determine what you want to work on. You will set goals that are reachable, and YOU will decided how to work towards them.

So what does your coach do?Trish - Coaching for Change

Before answering that, I must share with you one thing that coaching is NOT. Coaching is not therapy. If during your coaching sessions, therapy is determined as one of the resources required to meet your goals, I will assist with the process of finding the right therapist for you.

As your coach my goal is to help you work through that process. I will ask you the questions that will point you in the right direction. I will assist with researching both the issues/presenting obstacles and how to overcome them. I will help you to find the resources needed to be successful. And I will walk you through the process of setting the goals and objectives required to meet those goals.

Now once you have a clear idea of where you are wanting to be, and how you want to get there, we will decide together what support you require in moving forward. Primarily I will be your accountability partner. I will be looking for updates and helping to assess how your progress is coming. I will work with you to determine if there are new goals of reaching higher and/or maintaining the successes achieved.

How long will you need to work with a coach?

The answer to how long is completely up to you. You get to decide when we are done. You also get to decide how flexible the accountability will be and what will happen if you do not hold up your end of the bargain. Have you reached the goals you hoped to? Is the coaching relationship successfully assisting your journey?  Have you determined new goals to work on? Many people work with coaches for at least several months. Some people work with coaches for years and move through varying stages and or issues as they go.

I will “meet” with you via email, or virtual chat (text or audio) on a weekly basis (or otherwise, as determined in your sessions). I will help you navigate through a series of questions and conversations. The first session is a get to know you opportunity about where you are today and where you think you’d like to be headed, or what issue(s) you’d like to work on. This will also give you an opportunity to learn a little more about me and whether I would make a good fit for the coaching you are looking for.

What will be expected of you?

During sessions you will find yourself sharing/talking a lot more than listening. And you will be the decision-maker on this path.

In between our sessions you will have assignments, determined by you – with my assistance. I will be looking for an update during or prior to our next session(s). I may offer to provide resources to help with your journey. Most importantly, we will determine outcomes that will help us to know if you have achieved the desired objective and/or goal. And we will set a timeline by which you will work on them.

Coaching should not be stressful, but will be a bit uncomfortable. The only way to achieve change is to step outside of your comfort zone and do something that is at least a little bit of a stretch for you.

We will also determine what your learning style is and what will help you to be motivated to make the necessary changes to move forward. If this involves some sort of reward(s), we’ll establish what those rewards should be, and later, if they worked for your desired outcome. That way we will be able to set effective outcomes and rewards (or consequencWellness, parenting and social media coachinges if appropriate) going forward.

So what can we work on in our coaching sessions?

 

My areas of specialty are health and wellness; parenting/family/relationships/child care/and child development; social media marketing; curating family stories; and more. That being said I am able to work with you on just about anything that you identify as being important. My role is to ask you the questions that will help YOU to identify WHAT and HOW to work on the issue(s)/goal(s).

If you are ready to get started, or would like speak with me for a short consult to learn more, please complete my contact form. Or… you can join us on Facebook for a closed discussion about how coaching works.

I look forward to working with you!

 

 

Living “right” for health & wellness

Wellness has a right/wrong?!

Imagine that there is a “right” way to live. That by not living it your health and wellness suffers. Now imagine that this right way applies to every single human – regardless of age, gender, fitness level, income level, etc. – on the planet. It seems implausible. Why is it that people have such emotional responses to how others chose to live? Why is that so many try to convince others that their way is the right or best way?

*This post may contain affiliate links. TrishBlogs receives a small percentage of compensation for purchases made via these links.*

I have been looking into many options. Because of my chronic condition I have a specific motive for doing so – that is to find the right way for ME. I have read many books. I have surfed a lot of websites. I have listened to many podcasts.

 

It’s not one-size-fits all

Everyone presents his or her way as THE way to living the best life. From dietary recommendations of Paleo, to Vegan, omnivore, Vegetarian, low-carb to prescribed diets from nutritionists… one thing is clear to me. Each of our unique body-types, gene make-ups and lifestyles has a unique need for health & wellness. I’m not looking for a one-size fits all solution. I’m looking for what meets my individual needs – INCLUDING my other treatment options. It’s funny how few people question my doctors’ multi-prescription approach even with no noticeable improvement – yet tell someone that you have seen improvements due to a change to your diet based on natural/alternative medicine theory and you must heed many warnings.

There are a few common threads and that is where I want to focus for the time being. Limit processed foods. Eat real, whole, foods as much as possible. Read labels. The more green vegetables the better. Reduce sugar consumption. Move your body.

Then the waters begin to muddy.

Draw from multiple diet & exercise plans

It’s unfortunate that all professionals don’t have the same information. A base of unbiased general knowledge of all schools of thought and what situations they seem to apply best to. And the ability to then work with individuals to determine what is most appropriate for their lifestyle, body’s needs, etc.

I love research and so I have been attempting to find my “right” fit for a while now. From books like Dr. Sara Gottfried’s YOUNGER, websites like http://www.mercola.com/, podcasts like Ultimate Health, and professionals whose care I seek… Some of my preconceived ideas are applicable to a certain lifestyle (i.e. carb-loading for running races), but seem detrimental to my current condition. Where I once was training for endurance sport I learned specific recommendations. However, as my body began to complain, my mindset didn’t keep up with the changes. Not entirely.

So now, I am eating and exercising for my condition or what I hope will offer the best possible outcome. My biggest challenge is reminding myself not to compare my progress in any way to the formerly fit me. I need to compare my progress to me current situation going forward. One thing is clear – it’s much easier to navigate the waters when you have a better idea of the destination.

 

Wellness coaching services

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Drop me a note in the comments below, or connect with me on Twitter @ceilidhontherun or email me at trish at trishblogs dot com!

I invite you to subscribe to my blog using one of the options available on my page (email, rss, Google Connect, like my page on Facebook, etc.)

If you enjoyed this post, please do like/share it. You can do so using the easy share button below

Book list for 2017… (Books read so far)

I used to document each  book I’ve read and responses to them. I’d like to get back to that. Once I get caught up, I may work backwards and share some of the responses I’ve had to books I’ve already read this year.

Self Portrait, Reading, Book

To start I’ll share my book list read so far in 2017:

 

, Sheila Watt-Cloutier

, Rajiv Surendra

, Kristin Hannah

, Karyn L. Freedman

, Robert J. Sawyer

, Andre Alexis

, Gretchen Reuben

, Sarah Blake

, Marian Keyes

, Dave Kerpen

, Tami Stackelhouse

, Simon Sinek

, Greg Morgtenson

, Nia Vardalos

, Trevor Noah

, Linden MacIntyre

, Tami Stackelhouse

, Linden MacIntyre

, Malika Oufkir

, Nicholas Sparks

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Drop me a note in the comments below, or connect with me on Twitter @ceilidhontherun or email me at trish at trishblogs dot com!

I invite you to subscribe to my blog using one of the options available on my page (email, rss, Google Connect, like my page on Facebook, etc.)

If you enjoyed this post, please do like/share it. You can do so using the easy share button below

Living with Fibro (Fibromyalgia)

I’m often asked to describe some aspect of fibro (fibromyalgia), my chronic pain, chronic illness, etc. It’s not easy. There are so many pieces that all interconnect. As soon as I mention one thing, something else comes up… because one always affects the other, and another and another…

I recently went through my worst flareup. I’m beginning to feel like I’m coming out ahead of it now, but there’s never any total relief. My normal state is always in pain, just a lesser degree. I actually do not recall a day without pain anymore. It’s been more than thirteen years of dealing with this, day in and day out. I try not to get into it much, but you can rest assured that if I’m talking about it, it’s worse than “normal”.

What is fibro?

Fibromyalgia is a condition that affects the soft tissue, most specifically the fascia (connective tissue that attaches/covers muscles). The latest theory is something to do with nerves over-firing and not shutting off. The sensitivity to pain being much more active than pre-fibromyalgia. There may be a neurological root to this syndrome, however it is not psychological.

Fibro is so much more than that though. There are 18 tender points throughout the body that seem to be overactive at different times. During this last flareup, that lasted a few months, every single tender point was in excruciating pain. My “normal” usual involves about 6-8.

Fibro (fibromyalgia) & Chronic Pain Center

Symptoms of fibromyalgia

Living with fibromyalgia

Additionally, my muscles are always on high alert. My neck and shoulders are so tight at all times that knots form up and down my neck. It feels like that terrible neck and shoulder tension that comes during extensive highly stressful periods… only it’s 24/7. I find myself tensing muscles constantly, even in the most relaxed state. If I bring awareness to my body, I’ll notice it. And the most active pain areas are knotted up so that every visit to the massage therapist involves painful deep tissue massage in order to feel just a little relief from all the knots.

I see my massage therapist once/month. However, the benefit I feel from massage only last several days. If I could afford to, I’d have a standing weekly appointment. I also see each of a chiropractor, physiotherapist, my family physician and a pain specialist approximately monthly.

In the past I have been treated by acupuncturists, osteopaths, psychologists, social workers, natural medicine…

I have tried so many medications I have lost count. Meds for pain, meds to help my sleep cycle, meds for nerve endings…

Amitriptyline, nortriptyline, lyrica, Cymbalta, naproxen, advil, Tylenol, tramadol, Voltaren, cesamet… the list goes on.

I recently asked my pharmacy (which has only been my pharmacy for a little over three years) to give me a print out of my history. It’s several pages long. Imagine what the other ten years looks like!

I have always been one to try to avoid meds and I hate feeling like a guinea pig. Some treatments work but I have found no matter what the initial response, there is always a plateau at some point and the benefit no longer is seen.

At one point for over a year I had avoided eating all wheat, to no avail. I use a heating pad ritualistically at bedtime. I ice my flareups when they are inflamed. I have tried dry needling, “cupping”, many recommendations of supplements…

I have started logging everything, from symptoms to meds intake, foods eaten, water consumption, heart rate, stress levels, weather, my menstrual cycle, physical activity/exercise and sleep.

I live with a brain fog, and frequent vertigo. Sometimes I attribute it to lack of sleep, sometimes to the meds, and sometimes to my pain levels. In any event, my memory is nothing like it once was, and I have inconsistencies in efficiency of thought processing.

living with fibromyalgia

Photo by Paul Wesson Photography

I spent the better part of time I off recently (to rest and recover over a period of a few weeks) researching apps to log and sync most of that data. They don’t all interact, but I hope one day something will work together with them all.

Sleep is a chicken and egg kind of conundrum. I never ever get a restful sleep. My body can’t seem to get into a deep restorative sleep, ever. And yet, my pain cannot improve without some opportunity for my body to heal itself while I sleep. The pain keeps me awake, and the lack of sleep keeps the pain turned on. Chicken, egg, chicken. Egg. Chicken.

I love to be active, indoors and outdoors and I find when I have a regular routine of exercise that my health is definitely the best. But when a flareup occurs (which can be triggered by any combination of things including stress, the weather, and injury, or even just over doing it a little) I get completely derailed. And what would take a “normal” person 12 weeks to get back on track, will take me at least twice that. I need to double up the rest time and cut in half the workout intensities, and hope that something else doesn’t derail me before I get back on track.

Days like today, I feel like a complainer. A whiny, miserable, complainer. And I know there are those who look at me and think “there’s nothing wrong with you, why don’t you just suck it up?” But the fact is, as much as it gets me down, the tears just don’t flow. Living with fibro is frustrating, and often doesn’t feel like much of a life. But it’s mine and I will do so unapologetically.

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Drop me a note in the comments below, or connect with me on Twitter @ceilidhontherun or email me at trish at trishblogs dot com!

I invite you to subscribe to my blog using one of the options available on my page (email, rss, Google Connect, like my page on Facebook, etc.)

If you enjoyed this post, please do like/share it. You can do so using the easy share button below

 

 

Give me a body break!

“Body break”. Do you remember those ads?

participaction - body break

Thinking about the break I need, from my body, reminded me of them.

So, I’m looking for writing prompts to try to get the juices flowing again – after a long time of not feeling “it”… and what do I come across, but “write about your body”?

My body …

The one that feels like she’s seeking her own revenge on me? She’s been telling me for years now that I have subjected myself to too much stress and turmoil and that she wants nothing more of it. The problem is that now she’s become the cause of my stress and turmoil … since I have finally started working hard to pay better attention to preventing stress and turmoil.

And just when I feel like I can’t deal with any more physical stress, something else comes along. The silver lining? I have realized that I have actually gotten very good at NOT stewing over the things that I cannot control.

I sure hope she starts to see how far I’ve come and gives me a little break. If I could give myself a break – and not just a few sick days and a few extra days vacation at home with the kids over the holidays – but a real break… I would.

And I’m working on it.

Do you need a break?

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Drop me a note in the comments below, or connect with me on Twitter @ceilidhontherun or email me at trish at trishblogs dot com!

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Living with Fibromyalgia

Living with fibromyalgia is as frustrating as it is painful. After working through the pain all week and not feeling up to anything at home in the evenings, my weekends are most often spent playing catch up on my household chores. But come Monday, when one should return to work feeling rested and ready to take on a new week, I am more exhausted than ever and often in greater pain.

Living with fibromyalgia

This weekend I finally managed to clean out my pantry. Not a huge task on the scale of physical demand, but one that required standing and raising my arms above my head a lot. My shoulders hate that motion. So today, I pay for it, waking in pain. With a typical fibromyalgia flare-up: muscle tension everywhere and a headache that just won’t subside. No matter what extra strength Tylenol and water I consume, hot shower and extra strength Voltaren I use… I find myself sitting half undressed in a lazyboy, overheating from the pain, with a magic bag wrapped around my neck & shoulders.

I know how it sounds when I call into work many Monday mornings saying I’ll be late. I know my staff and my supervisor begin questioning the validity of my condition. Most of the time people around me don’t even know what pain I am enduring. I tell those who do notice, that if they can actual tell that I am in pain, it has to be pretty bad, because the days that people think I’m doing just fine, inside I feel like I’m just barely coping. The fact is, I would be much better off with a part-time job, and even better off with work that I can do from home on a flexible schedule.

I think by speaking with other Fibro-sufferers, people would learn that my situation is not at all uncommon among those with fibromyalgia. There is nothing I wouldn’t give to be able to live day to day without pain, wake feeling rested and not feel fatigued all day long, and have a clear head to process thoughts with an ability to remain focused for more than 90 seconds. Today is one of those days. I don’t want your sympathy… Just a little compassion, instead of judgement. Patience,
instead of frustration. And maybe a few extra moments to process thoughts before giving a response…

We all live with challenges that others don’t know about. It’s time to start opening up and sharing, rather than assume these challenges somehow make us inferior or less than competent. What are your daily challenges that you keep hidden away?

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Drop me a note in the comments below, or connect with me on Twitter @ceilidhontherun or email me at trish at trishblogs dot com!

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Leaping for change


Today is Leap Day and I want talk about Leaping for change…

Most people accept change with a great deal of resistance. Fear of the uncertainty is a big obstacle.

In my experience it is always best to leap. I like to take big leaps, but I also embrace change. I love the excitement and newness of things.

Leaping on the beach

Leaping doesn’t have to be monumental mountain top to mountain top leaps though. What if your leaps looked more like bunny hops?

When getting started slower/non-elite runners are hesitant to refer to running. Something inside says, if it’s not at lightening speed, then it’s ONLY jogging. My philosophy was always that if two feet were moving forward and occasionally both feet leave the ground at the same time, it’s running. We all have to start somewhere.

Just as with running, a slow run… or in this case bunny hop leaping allows us two things: 1) a greater chance for success and 2) much less to lose if unsuccessful and therefore an easier point to restart from – if need be. As the successes roll in and the losses are bearable, maybe we’ll be willing to leap bigger, higher, further at once.

I prefer taking big and multiple leaps. If there are things that are related in some way, whether it be timing, or the types of challenges being addresses, then I prefer to do it all at once. It seems that my mind or body, or both, accept one change right along with the other.

Trying to live a healthier life? Change up the entire routine at once. New job, new hours, new fitness routine and eating habits…

Trying to organize the household better? New calendar, iphone app, schedule of daily activities, log book and accountability…

I’ve taken a few leaps that I have shared recently with a new job and attempting to establish better healthier habits like eating well, going to the gym, writing, making photographs and attempting to finish more books again. Some of these were bigger than others. Some are more/less successful so far.

I’m considering my next leap(s) with hopefully even more significant change to result. What are you leaping for?

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Drop me a note in the comments below, or connect with me on Twitter @ceilidhontherun or email me at trish at trishblogs dot com!

I invite you to subscribe to my blog using one of the options available on my page (email, rss, Google Connect, like my page on Facebook, etc.)

If you enjoyed this post, please do like/share it. You can do so using the easy share button below!